Marnie’s Previvor Journey: Preventative Double Mastectomy and Reconstruction Story
Coping with Surgical Fatigue After Preventative Mastectomy
After having a preventative double mastectomy and four reconstructive surgeries eight years ago, I never felt things were quite right. I had surgical fatigue (yes, it is a thing!) and I constantly experienced pain and discomfort in my right breast. At one point, I was so frustrated that I considered implant removal with aesthetic flat closure. But I didn’t want to go back under the knife, especially with my history of being hospitalized for staph infection.
Lack of Information for BRCA Previvors Considering Reconstruction
When I had my initial surgery in 2013, there was no online community of survivors and previvors coming together to share our experiences and learn the pros and cons about the various types of breast reconstruction. I didn’t feel adequately informed about my options for reconstruction back then, and there was nowhere to go to find out more. If I’d had a way to gather more information from women who’d been through it before me, I still might have made the same decisions, but I would have felt better about it.
Deciding on Revision Surgery: A BRCA Previvor’s Choice
Eight years after my initial surgery, I knew I would need another reconstruction. This time though, I decided to be better informed and to educate myself about my options. I looked for a surgeon who really understood what I called my breast “situation” and who helped me feel comfortable finding a solution that worked for me and my body.
Choosing the Right Plastic Surgeon for Breast Reconstruction
Thankfully, I already knew members of the team at NYBRA Plastic Surgery in 2013 after I created the Billow pillow (a breast pillow that is actually comfortable and effective!). I observed their practice and wonderful work for years and knew that I could trust them for my reconstruction. After speaking with five incredible surgeons, I decided to go with Dr. Ron Israeli. He carefully listened to me, explained my options, and was supportive throughout the entire process.
Discovering Implant Issues During Revision Surgery
Post-surgery, I was surprised by what Dr. Israeli found in my chest. I had no idea that my last surgeon had used a very thick porcine-derived mesh which felt hard under my skin. I also didn’t know that my implants were two different brands and sizes! Dr. Israeli removed the thick mesh and changed my implants to Natrelle cohesive gel implants that look and feel great. He also used AlloDerm to reinforce the implant pockets so that I was able to go a little smaller, which was what I wanted.
Positive Outcomes from Breast Reconstruction Revision
Honestly, I felt tremendous relief as soon as I woke up from surgery, and I am so happy that I chose Dr. Israeli and Natrelle.
Learn Look Locate: Supporting BRCA Previvors in Their Reconstruction Journeys
At Learn Look Locate, we are inspired by Marnie’s journey as a BRCA previvor. Her story highlights the challenges and decisions faced by those who choose preventative mastectomy and undergo multiple reconstructive surgeries. Marnie’s experience underscores the importance of being well-informed about reconstruction options and finding the right surgical team. We are proud to provide a platform where previvors like Marnie can share their experiences, helping others navigate similar paths. For those considering preventative measures or facing reconstruction decisions, we offer comprehensive resources on BRCA mutations, surgical options, and recovery support. Marnie’s story reminds us of the power of perseverance and the importance of making informed decisions in one’s breast health journey.