Paget's Disease of the Breast
A Rare and Often Misdiagnosed Type of Breast Cancer
Paget’s disease of the breast is a rare type of breast cancer that begins in the ducts of the nipple and spreads to the nipple surface and areola. It is named after Sir James Paget, an English surgeon who first described the disease in 1874. Paget’s disease often presents with visible skin changes and is commonly associated with an underlying ductal carcinoma in situ (DCIS) or invasive breast cancer.
Symptoms of Paget’s Disease of the Breast
The most common symptoms of Paget’s disease include:
- Redness, scaliness, or flakiness of the nipple or areola, often resembling eczema or dermatitis
- Itching, tingling, or burning sensations in the nipple or areola
- Nipple discharge, which may be bloody or straw-colored
- Nipple retraction or inversion A lump or thickening in the breast, which may indicate an underlying breast cancer
It’s important to note that these symptoms can mimic other benign skin conditions, leading to delayed diagnosis. If you experience any persistent changes in your nipple or areola, it’s crucial to consult with a healthcare professional promptly.
Diagnosis and Staging
Diagnosing Paget’s disease of the breast typically involves several steps:
- Physical examination of the breast and lymph nodes
- Mammogram to detect any underlying breast abnormalities
- Biopsy of the nipple or areola to confirm the presence of Paget cells
- Biopsy of any suspicious breast mass or lymph nodes to determine the presence and extent of underlying cancer
If an underlying breast cancer is found, additional tests, such as an MRI or CT scan, may be performed to determine the stage of the cancer and guide treatment decisions.
Treatment Options for Paget’s Disease of the Breast
Treatment for Paget’s disease depends on the extent of the disease and the presence of any underlying breast cancer. Options may include:
- Surgery: A mastectomy (removal of the entire breast) or lumpectomy (removal of the tumor and surrounding tissue) may be recommended, depending on the extent of the disease and any underlying cancer.
- Radiation therapy: If a lumpectomy is performed, radiation therapy is usually recommended to reduce the risk of local recurrence.
- Chemotherapy: If the underlying breast cancer is invasive or has spread to the lymph nodes, chemotherapy may be recommended to reduce the risk of recurrence and improve overall outcomes.
- Hormone therapy: If the underlying breast cancer is hormone receptor-positive, hormone therapy may be recommended to lower the risk of recurrence.
A multidisciplinary team of healthcare professionals, including oncologists, surgeons, and radiologists, work together to develop a personalized treatment plan based on each patient’s specific case.
Survivor Spotlight:
Zandra, USA
“Two years before being diagnosed, I began experiencing a burning sensation in my breasts, and one of my nipples became inverted and started to look flat. I also noticed a white discharge from the nipple that resembled dried breast milk.”
Zandra’s journey emphasizes the importance of being attentive to any changes in the nipple or areola and seeking prompt medical attention. Her story serves as a reminder that early detection and timely treatment can significantly improve outcomes for those diagnosed with Paget’s disease of the breast.
Coping with Paget’s Disease: Support and Awareness
Receiving a diagnosis of Paget’s disease of the breast can be challenging and emotionally overwhelming. It’s essential for patients to have access to support services, including:
- Counseling and emotional support
- Patient advocacy and education programs
- Peer support groups connecting patients with others who have faced similar diagnoses
- Assistance with navigating the healthcare system and treatment options
At Learn Look Locate, we are dedicated to raising awareness about Paget’s disease of the breast and providing comprehensive resources to support and empower patients and their loved ones. By sharing information and survivor stories, we aim to foster a community of understanding, encouragement, and hope.
Remember, if you or someone you love is facing Paget’s disease of the breast, you are not alone. With advances in treatment and a strong support network, it is possible to navigate this challenging journey with resilience and courage. Stay informed, advocate for your health, and lean on the support of the breast cancer community as you move forward with your diagnosis and treatment.
