Invasive Lobular Carcinoma (ILC)

A Distinctive Form of Breast Cancer

Invasive Lobular Carcinoma (ILC) is the second most common type of invasive breast cancer, accounting for about 10-15% of all invasive breast cancer cases. ILC begins in the milk-producing glands (lobules) of the breast and invades the surrounding tissue. Unlike the more common Invasive Ductal Carcinoma (IDC), ILC tends to grow in a single-file pattern, making it more challenging to detect on mammograms and clinical exams.

Symptoms of Invasive Lobular Carcinoma 

The symptoms of ILC can be subtle and may include:

  1. A thickening or fullness in the breast, rather than a distinct lump
  2. Swelling or change in texture of the breast
  3. Dimpling or puckering of the skin
  4. Inversion or flattening of the nipple
  5. Swelling or a lump in the armpit

Due to its diffuse growth pattern, ILC may not cause a noticeable lump, making it crucial for individuals to be attentive to any changes in the look or feel of their breasts.

Diagnosis and Staging 

Diagnosing ILC may require a combination of tests, including:

  1. Mammography, although ILC may be harder to detect on standard mammograms due to its growth pattern
  2. Ultrasound or breast MRI to provide additional imaging of the breast tissue
  3. Biopsy to confirm the presence of cancer cells and determine the tumor’s characteristics, such as hormone receptor status and HER2 status

If ILC is confirmed, additional tests, such as lymph node biopsy or imaging scans, may be performed to determine the stage of the cancer and guide treatment decisions.

Treatment Options for Invasive Lobular Carcinoma 

Treatment for ILC typically involves a combination of therapies tailored to the individual patient based on factors such as the stage of the cancer, the tumor’s characteristics, and the patient’s overall health. Treatment options may include:

  1. Surgery, such as lumpectomy or mastectomy, to remove the tumor and a margin of healthy tissue
  2. Radiation therapy to reduce the risk of local recurrence after lumpectomy
  3. Systemic therapies, such as chemotherapy, hormone therapy, or targeted therapy, to control the growth and spread of cancer cells
  4. Lymph node removal or biopsy to determine if cancer has spread to nearby lymph nodes

A multidisciplinary team of healthcare professionals work together to develop a personalized treatment plan that addresses the unique characteristics of ILC.

Survivor Spotlight:
Leslie, USA

“My name is Leslie Ferris Yerger, and I was diagnosed with Stage IV lobular breast cancer de novo, meaning there was no diagnosis previously at an earlier stage. This is not so uncommon with lobular breast cancer, since it is notoriously difficult to see on both mammograms and ultrasound. “

Leslie’s journey underscores the challenges in detecting ILC and the importance of persistence in seeking answers when something doesn’t feel right. Her story serves as a reminder to trust one’s instincts and advocate for thorough evaluation when concerns arise.

Thriving After ILC: Support and Self-Care 

Navigating a diagnosis of Invasive Lobular Carcinoma can be emotionally and physically demanding. To promote healing and well-being, it’s essential for individuals to have access to comprehensive support services, including:

  1. Emotional support through counseling, support groups, and peer mentoring
  2. Integrative therapies, such as massage, acupuncture, and mindfulness practices, to manage stress and promote relaxation
  3. Nutritional guidance to support overall health and well-being during and after treatment
  4. Lymphedema management to address swelling that may occur after lymph node removal

At Learn Look Locate, we are committed to providing informative resources and fostering a supportive community for those affected by Invasive Lobular Carcinoma. By raising awareness, promoting early detection, and sharing survivor stories, we aim to empower individuals to take an active role in their care and connect with others who understand their journey.

Remember, if you or a loved one is facing ILC, you are not alone. With a multidisciplinary team approach, a focus on self-care, and the support of the breast cancer community, you can navigate this path with resilience and grace. Stay informed, prioritize your well-being, and draw strength from the experiences of those who have walked this path before you.

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